Hi everyone, didnt know if this is right place to post, but here goes. I have received a report fromt he haemophillia dept regarding my "abnormal platelets". It says that the PFA100 was prolonged in both cartridges, with a collagen/ADP of 160 (62-100) and a collagen/epinephrine of <300 (81-165), in view of the prolongation of the PFA in both cartridges they have decided to carry out platelet aggregation/nucleotide studies. I have an appt for 4th March. All other tests i.e. ANA dounble-stranded DNA and ENA were normal. Does anyone have any idea what any of this means? When I asked what abormal platelets were when at the consultation, he just said its usually something you are born with, or due to meds, he checked all my meds and said it looked ok. Then he said he was taking my case to the multidiscipliniary meeting, and now they have decided to do these other tests. I only went originally due to excessive bruising, which I have had for years!!!

Hi Barb

First of all, I would ask your GP if he can explain this to you. That way, you won't be worrying about what they mean. I don't really think anyone on here is qualified to interpret such complex tests.

If you can get your GP to explain it all, then at least you won't be worrying about the results until you go for your rheummy appointment at the end of next week.

Keeping everything crossed for a really successful appointment.

Much love to you

Jeanxxxx

Thanks melly, Jean and Doreen, unfortunately I wont be able to see my GP as the appt at haemophillia is on Monday. All I know is that they need to do more tests. When I go on Monday I hope he can give me more information, it just is so confusing. At the original appt in December, he though all was ok, and just did tests to check for something called von willibrand's which can cause bruising and is hereditary, but that was clear. Now the problem with the platelets has come up, so even more tests. Hopefully I can find something out. Take care all x

Hi Barbara, I do not now if it is relevant but when I was on Sulfasalazine I was told that my platelets had collapsed and to stop taking straight away. After a trip to the consultant I was put on Metho, and the problem disappeared.

John

HI ya barbs

aww best to leave it to clinic specilaist to explain ask him/her to tell you in plain english not jargon,to put your mind at rest good thing is they are keeping eye on things and doing test etc.
try avoid looking it all up one only gets either confused or scared.
all very best for monday let us know how u get on.
good to see they already ruled our medication.
take care hugs
lv melly

aww good,just know from own mistakes past and others on here helped me same way.
take care hope you get firm answers soon the waitng is hardest part.terms of lupus etc.
hugs
melly

Hi Barbara

I think it was quite short-sighted of the dept. to give you a report that clearly any lay person would not understand without more information. The results you were given are both highly detailed and complex and could be caused by any number of diagnoses. It is inevitable that people will go away and try to find their own answers and in so doing actually come up with the wrong ones leading to unnecessary stress and concern. Having to wait for the answers leads to further anxiety.

Good luck with your appointment, hope you get some positive feedback and proper explanations. Do let us know how you go on.

Lyn x

Take care my love and all the very best for Monday. Will be thinking about you.

Muc love
Jeanxxxx

I'm a fine one to talk ... I do it all the time Guess it's the voice of experience speaking; I never learn despite good intentions!
Lyn x

Hello Barbs
Those kind letters now think of it you could have called up gp asked for phone consultation to explain it all,and also let clinic know how it made u feel giving u such letter thats not written in understandable terms.
grr
it would have made u feel anxious.
i pray all goes well for you tomorrow the hardest part is not knowing,once you get to the stage of light beign shone on what it is you will feel like big weight lifted off you.
warm hugs.
be thinking of you tomorrow.
lv melly